How is my personal information protected?
There are guidelines put in place to protect your personal health information. Personal health information is stored on protected computers. Usually, researchers will remove your name and other direct identifiers (like your date of birth) from your information and replace them with a code. There will be a master list linking the codes to names, but it will be kept separate and secure. Researchers also limit and keep track of who sees your personal health information. To work with your health information, researchers must promise not to try to find out who you are. Researchers will tell you if someone accesses your data who does not have permission to do so.