When you participate in a study, there are guidelines research teams use to protect your personal health information. Personal health information includes your name, address, doctor, and medical information. Different studies may ask for different information. This information is stored on password protected computers. Usually, researchers will remove your name and other direct identifiers (like your date of birth) from your information and replace them with a code. Researchers limit and keep track of who sees your personal health information. To work with your health information, researchers must promise not to try to find out who you are. Researchers will tell you if someone accesses your data who does not have permission to do so.
